This Saturday, February 29th is #RareDiseaseDay—a day made to raise awareness for the 300 million people living with a rare disease around the world.
There are approximately 6,000+ rare diseases that are chronic, progressive, degenerative, disabling and frequently life threatening.
Between 90-95% of these diseases have no FDA approved treatments, and many go undiagnosed.
Rare disease clinical research studies pose unique challenges in project management, site selection, patient enrollment, and retention.
At PharPoint, we are relentless in supporting our clients so that they may advance the research and approval of breakthrough treatments.